7/17/2008

We returned from Gainesville about an hour ago. It has been a really long day and it was really hard on Holly. She is going to be exhausted tomorrow. It is about 3.5 hours door to door, times two ways, plus two hours to get through the docs office, plus a quick meal and it all equals a really long 10 hour day for me and an especially tiring day for Holly. We met with one of the team of neurosurgeons, Dr. Whiting, we had not met her before, she was young and pretty technical. We asked all of our questions:
  1. Insomnia = may continue for months but should lesson with time, take sleeping pills if necessary
  2. Scab on incision = this was the only real concern of the doctors, there is still a large scab (see pic at bottom of blog) it is normal and is not infected, but the scab needs to stay in place for a few more weeks to properly heal, there will be a dent there but it is still really attached and a deep scab, there is no puss or leaking so it is fine just let it heal
  3. Pooping = take laxatives if necessary, common after a major surgery to have poop problems for 6-8 weeks
  4. Driving = not until Holly feels like it, after the drive to Gainesville she has had alot of vertigo, she is not to drive until she feels like she can, she said this could be a while and dont rush it and have a wreck
  5. Swimming = ok but dont get the scab real wet, fine to get head wet after scab falls off in a few weeks
  6. Numbness to head = may last forever, may get better with time, Holly has a numb spot where the scull was removed and has a major itching sensation there and when she scratches it she can't feel her scalp and can't satisfy the itch, it could drive you loco
  7. Five pound lifting ban = removed, she is free to pick up the kids
  8. Clicking noise in head = not very common, unknown cause, thinks it will go away with time
  9. Jaw not opening very far = common may get better with time maybe not, they had to cut one of the muscles which controls the jaw and the swelling is causing resistance with opening her mouth very far
  10. Lower back pain = may be low grade urinary tract infection, they had Holly pee in a cup to analyze for possible infection as a precaution

They said everything looks great, their only real concern was the scab staying in place so the incision could heal properly. We then met with Yolanda, the PA, who was the one who was so helpful on the phone several times with the pain med issues. Then Dr. Hoh came in for a meet and greet and he took a look at the scar. He said there would be a CT angiogram at 6 months, 1, 2, and 4 years post surgery. He said there is a less than a 1% of having another aneurysm or having another one form at the base of this one they clipped. Holly and I joked that she is just a lab rat with a number and is part of a study Dr. Hoh is conducting. God Bless you all!!!

2 comments:

catwoman said...

dear holly and courtney glad things are looking better the scab will come off when its completly healed dont rush this sure hope your mouth will get better soon so sorry you are still having problems we continue to have you in our thoughts and in our prayers get well soon love linda and donny arnold bowling green kentucky.

ChrisC said...

Hey Holly and Courtney! I'm glad to hear that your report was good and that you are back on the road to recovery! It's amazing the little things that can get in your way in the process!

Just wanted to give you a little insight (having been there myself) to some of the issues that you are facing:

*Insomnia - I agree that it may last a while - you just can't go into someone's brain and not have some disturbance of the functions that we take for granted - like sleep! Napping does interfere with a good nite's rest, but napping is essential in getting your energy back. I think it was about at the 3 month mark that I went an entire day without laying down at some point. Give it some time, it will improve.

*Numbness - that is from cutting the skin nerves - it can about drive you nuts because it itches, you scratch and then you can't feel anything more than pressure when you scratch it! That definately will be better at about the 4-6 month mark. The scab will heal, but right now it's protecting the wound underneath, and as it heals, the scab will loosen and fall off.

*Clicking in your head - I thought I was really going nuts because I kept hearing this "rice krispie" sound on the side of my head.....even had my family listen (and they REALLY thought the pain meds were messing with my mind). It's trapped air from under the bone flap that is slowly making its' way out. There's no harm, it's normal, and it will go away. You can tell who's had brain surgery and who hasn't when you ask that question and they say it's uncommon - it happens ALL the time!

*Jaw opening - the muscles on the temporal side of your face, that control the opening and closing of your mouth have been cut and restitched. The advice my dentist gave me was get some gum and chew it often - sugar free is best just for dental health - but it helps to strengthen your jaw muscles. Practice opening and closing your mouth and that, too, will get better.

Sorry this is long winded, and I hope I've given you some hope here! I'm still waiting for your phone call to say you're ready for that lunch I promised to take you to! My best wishes for your continued recovery

Chris in Ft. Pierce

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